My son has pfapa and epilepsy - #10568
I have a question about my son ever since he was born would get this odd fever around november every year always during the colder weather, then when he was 6 during covid he got really sick could not eat or anything, in and out of hospital, finally got admited, also steroids helped it go away but when he was admited no one listened to me, he was in there 3 days i honestly thought he was gong to die, but then he got diagnosed with pfapa, after that we thought every thing was fine, the following november he had a absent sezuire, we did tests and stuff and said it was a fluck, then he had one in november but this one turned from absent to clonic, i am just wondering if his pfapa diagnosis was wronge and there is something else happening. I ask and i get told no, but as a mother i feel like there is something else, also he has been diagnosed with adhd, and he gets head achs also and when he runs witch he has been tested for ashma and tested negative he gets winded at times. i just want someone that can just look at his case and if you have questions i can answer, i am just wondering if there is something else.
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